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LONDON Campaigns Champion

Are you passionate about making a difference? Do you want to use your voice to create real change for those affected by Motor Neurone Disease (MND)? If so, we need you!

As a London Campaigns Champion, you’ll play a key role in raising awareness, influencing decision-makers, and ensuring the voices of people living with MND are heard. No prior experience is needed—just passion, drive, and a commitment to making a difference.

What you’ll do:

Support MND Association campaigns to influence local and national policies
Help raise awareness by engaging with your local community, MPs, and decision-makers
Share key messages on social media and through community networks
Attend events, meetings, and campaign actions to represent the MND Association
Be a voice for those affected by MND and help push for meaningful change

What we’re looking for:

Passionate and driven individuals who care about MND
Strong communication skills and confidence in engaging with others
Reliable, flexible, and able to commit some time each month
Willing to learn and work as part of a supportive team

This is a fantastic opportunity to make a tangible impact while gaining valuable experience in campaigning and advocacy.

Join us and help create a future free from MND.

To apply please complete the application form, or contact abigail.igbokwe@mndassociation.org for further information

The MND Association was founded in 1979. Our mission is to improve care and support for people with MND, their families and carers. We also fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

“I am extremely honoured to be a volunteer for the MND Association. The most rewarding thing is knowing that I have helped people to access the services, equipment and support they need.” Jo-Ann, Volunteer

What’s involved?

  • Promoting central campaigns on social media
  • Emailing local councillors to improve services for people living with and affected by MND in your area (our team will fully support you with this!)
  • Talk to MPs and decision makers about what MND is and why it’s important that people have access to high quality health and care services (again, we’re here to help)
  • Working with regional MND Association staff to identify issues and gather evidence for local (and potentially national) campaigns
  • Participating in working groups, training and learning activities

This role will suit you if: 

  • You’re interested in learning and improving your campaigning skills
  • You want to make a positive difference for people living with and affected by MND
  • You’re a good communicator. No matter where your interest lies, be it written or spoken, sharing articles or providing feedback, you have so much to offer!
  • You are computer literate and have access to email/the internet, or someone who can help you with this

What’s in it for you?

  • Joining a friendly and dedicated team
  • Opportunity to develop your campaigning skills and expand your network
  • Access to a range of workshops, training and events
  • You’ll be amongst the first to hear about any developments impacting people living with MND
  • Join our Campaigns Volunteer Facebook group to connect with, learn and share with others
  • A chance to positively contribute to the lives of those living with and affected by MND

How flexible is the role?

This role is super flexible allowing you to spend as little or much time as you’d like.